Posts
Tomorrow, I will be having brain surgery to address Chiari malformation that has been causing many troublesome symptoms for the past 2 1/2 years.
It took a long time to figure out the diagnosis and I’m very grateful to have a highly specialized neurosurgeon performing the operation.
The recovery is estimated to be 3-6 months because my brain hasn’t had adequate cerebrospinal fluid for so long that it will take a long time to heal. I’m not sure when I will be able to write again but will try to pop in when I’m…
In answer to Emerson’s question
I try not to be in crowds of friends.
As an HSP and introvert, I much prefer to be with only one or two people at a time so we can talk and listen with each other well and truly.
Getting medical care in the US is way too time-consuming and difficult.
I acknowledge that I am privileged in that I’ve always had good insurance but it can still be a challenge to access the care I need.
Case in point: I was diagnosed with hypermobile Ehlers-Danlos syndrome, an inherited connective tissue disorder, this year. At age 65. That’s a lot of decades of missed diagnoses with many of the manifestions of hEDS written off as idiopathic, stress-induced, hormonal, anxiety-induced, or untreatable.…
I’m new here and finding my way.
I answered the given question first because I couldn’t figure out how to bypass it and just write.
Writing is not as easy for me these days, especially late in the day as it is now. For the past two and a half years, I’ve been dealing with significant brain fog. In late July, it was confirmed that I have Chiari malformation, which is when the brain tonsils slump down…
In answer to Du Bois’s question
No one has ever characterized me as being parrot-like in any way.
I hold many truths and try to express them as clearly as I can.
A place here
Substance is by invitation. If you would like to join, Joanne can invite you. Leave your name and a line, and you will hear back by email.