I acknowledge that I am privileged in that I’ve always had good insurance but it can still be a challenge to access the care I need.
Case in point: I was diagnosed with hypermobile Ehlers-Danlos syndrome, an inherited connective tissue disorder, this year. At age 65. That’s a lot of decades of missed diagnoses with many of the manifestions of hEDS written off as idiopathic, stress-induced, hormonal, anxiety-induced, or untreatable.…
